Once again, life at failblog has led me to make another serious post.
I was born with Neurofibromatosis. This is a degenerative disease. It is what will eventually kill me. Assuming I don't get hit by a bus first. I don't have health insurance. I can't afford it. I simply can't. What one insurance company quoted me, I wouldn't NEED the insurance! I could use that money (there was a $5,000 deductible involved) to cover nearly all of my doctors visits.
Most people who have met me wouldn't know about my condition if I didn't tell them. I'm lucky in that regard. Most of my issues area largely "invisible". But for crying out loud! What the fuck is wrong with trying to provide adequate health care to EVERYONE!? It's not like I get sick just so I can suck tax dollars out of anyone's pocket! There are so many people like me who fall through the cracks. There are so many people who are worse off than me.
There are so many people who think that folks like me are idiots and morons for saying that current health care is inadequate. They say that we don't know what we're talking about. I've lived the life. I know from what I'm talking about.
If there is a program out there to help me, they sure as hell make it as difficult as possible to get to. See, part of my issues include learning disabilities, which makes navigating the convoluted ins and outs of the system overwhelming.
It is in a word frustrating.
--Little Bird is fed up.